Butterfly Kisses

Colton update

2009-08-14T22:02:00.012-06:00

Last Friday Colton spent the night at Primary Children's having continuous monitoring done in the sleep lab since his problems mainly happen after he has been asleep for a while. He didn't sleep well between the old metal crib that made a ton of noise every time he moved, the 30 plus wires attached to him and not being in his own bed. Matt stayed with him the whole night and I took Madison and her friend Grace to see the new Ice Age movie. Even though it was so cute watching the girls giggle and interact with the movie, I could not stop thinking about my poor little guy in a strange place. It helped to know that he was with his daddy. After the movie was over I could not sleep. Thank goodness for Facebook. :) Madison had a hard time not having her baby and daddy at home. She cried most of the night asking if the doctors were going to hurt her baby. Matt sent a picture of him playing in the bed. I think that helped reassure her that he was just fine. Moments later I found her fast asleep in my bed.

Today we got the results from the doctor, he said that although he is improving some he wants Colton to be put back on oxygen while he is sleeping and keep the monitors on him and run the tests again in four to six months. So for a problem that we were told would go away by the time he was four months old seems to be something that possibly might never go away, only time will tell.

Bouncing baby boy

2009-08-09T22:11:00.005-06:00

Colton loves his bouncer that Mary let us borrow, thanks again. Here is a short video of him in it, sorry for the poor quality it was a little too dark for the camera.

update

2009-07-22T16:34:00.007-06:00

Colton at 7 months

Weight: 18 LBS. (40% percentile)

Length: 27 inches (50% percentile)

My little guy is such a wonderful addition to our family. It seems like everyday is a new adventure!! In the past couple of weeks he's started to jibber jabber, sit up with help, rolls completely over all by himself, and pushes himself up.

The doc said that Colton should be sitting up all by himself by now. Not the words I wanted to hear. Then he went on to say that he still believes Colton could have had a hypoxic brain injury at birth, but we'll just have to wait and see if he can walk and talk. WOW, it just gets better!!! Finally he won't leave Colton's head alone. He proceeds to tell us that Colton might have craniosynotosis, that means that his scull has fused together to early, leaving nowhere for his brain to grow. My poor baby! The only good news he had for us is that he wants us to take him off the oxygen as a trial to see how he does without it. Sounds a little scary to me, but I have to just trust that the doctor knows best.

On a lighter note...

As I was tucking Madison into bed last night, she looked at me so seriously and said, "mom you aren't allowed to have anymore treats, because your getting to fat. You're going to get so big you're going to blow away!!!" Wow you know it's time for a diet when your 4 yr. old compares you to an air balloon...LOL! No more treats for me!!! :)

Justin and Stephanie

2009-06-26T12:47:00.011-06:00

June 6, 2009

The cute couple

getting ready

Madison was the flower girl.

Stephanie's uncle was able to marry them!!!

Colton

Fun site..

2009-04-27T22:26:00.003-06:00

My future sister in law got me hooked on this site. Click on the link below to see Madison dancing with her Papa.

http://sendables.jibjab.com/view/1X5AL76knqsKptE9

The Easter Bunny.....

2009-04-11T21:01:00.003-06:00

We took the kids to see the Easter Bunny today and Madison did not seem to be happy about the whole stand next to six foot bunny so we can take your picture idea, we even tried the candy bribe routine but I think she knew she was getting candy no matter what.

Catching up part 2....

2009-03-21T13:43:00.002-06:00

Make a Smilebox slideshow

Catching up.....

2009-03-21T12:40:00.006-06:00

So these blogs are a cool way to keep everyone up to date on the goings on of our family but it only works if you actually do it. Most of our neighbors do it regulary but for some reason we have been lazy with it so, going to post some random stuff that has happend in the past few months so papa black and whoever wants to see can. Papa goes down to Arizona every winter so this is a good way for him to see his grand babies.

Make a Smilebox slideshow

Tip of the week

2009-03-21T11:48:00.005-06:00

Everyone knows that you need to clean the outside of your monitor screen but not everyone knows that it is just as important to clean the inside of your screen. Click below on the link to see the simple way to cleen it. www.raincitystory.com/flash/screenclean.swf

My Little Colton

2009-03-13T16:44:00.005-06:00

These past couple of months have been a real trial for our family. Every doctor has their own opinion of what they think is wrong with our son. After a trip to the E.R. and a couple of days at Ogden Regional ,the first doc wouldn't share his opinion even though he sent him home on oxygen and a monitor. When he had a seizure we decided to get a second opinion. That doc thought he had a stroke and sent us to Primary Childrens where that team of doctors came to the conclusion that he was premature. That night the ear nose and throat doc came in to look at Colton and told us that he believed it was something else. After the way he was born I am slowly losing faith in the medical field. My advice to anyone would be to be your own advocate. Ask questions and make sure your getting quality care. In the meantime my poor little Madison was pawned off on Debbie and Matts' sister Kimberly. None of this would have been possible without you guys. Many thanks!!! Someday I hope I will be able to repay you.
Thank you to everyone who brought us dinner, gifts,and kept our little Colton in your prayers. It was very thoughtful of you!